The information given on this site is aggregated from relevant contracts managed by the Delegation of the EU to Bosnia and Herzegovina and is presented in an indicative and illustrative format for the purpose of general public awareness and information. It cannot therefore be construed as a legally binding or exhaustive account of all EU financial assistance to BiH and may not be quoted as such.

Skenderija 3a
71000, Sarajevo
Bosnia and Herzegovina

t: +387 (0)33 25 47 00
+387 (0)33 56 08 00
 
f: +387 (0)33 66 60 37
+387 (0)33 66 83 90

Delegation of the European Union to Bosnia and Herzegovina

& European Union Special Representative in Bosnia and Herzegovina

The information given on this site is aggregated from relevant contracts managed by the Delegation of the EU to Bosnia and Herzegovina and is presented in an indicative and illustrative format for the purpose of general public awareness and information. It cannot therefore be construed as a legally binding or exhaustive account of all EU financial assistance to BiH and may not be quoted as such.

Skenderija 3a
71000, Sarajevo
Bosnia and Herzegovina

t: +387 (0)33 25 47 00
+387 (0)33 56 08 00
 
f: +387 (0)33 66 60 37
+387 (0)33 66 83 90

Contribution of CSO networks to improving the everyday lives of people living with rare diseases

Project details
Sectors Democracy and governance, Rule of Law and fundamental rights
EU Acquis Chapters Consumer and health protection
EU funds 500 000 €
Implementation period 2021 - 2025
Categories
  •  Civil society;
  •  Gender

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Summary
The project is aimed at establishing a strategic framework for improving the health care of people living with rare diseases, and developing and increasing the capacity of networks of civil society organizations (alliances for rare diseases) for partnership dialogue with authorities, creation and implementation of health care policies and programs.
Results
Implementation of this project will result in: - Effective management structures and procedures were established, - Action plan with partner responsibilities was created - Steering Committee was established that considers important project issues and makes a priority, performance measurement, deadlines, expected results of the project and project intervention recommendations. - Advocacy activities were carried out to appoint the National Coordinator for Rare Diseases and establish the Federal Centre. - More details about the project results are available at https://euresurs.ba/projekat/contribution-of-cso-networks-to-improving-the-everyday-lives-of-people-living-with-rare-diseases-(2021...)/10029
Locations

Government level color legend

  • Fully funded project on only one level/location:
  • STATE
  • ENTITIES AND BRCKO DISTRICT
  • CANTONS
  • MUNICIPALITIES
  • Partially funded project on multiple levels/locations:
  • STATE
  • ENTITIES AND BRCKO DISTRICT
  • CANTONS
  • MUNICIPALITIES
Project is implemented at state level in:
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